Restoring Hope: Razom’s Co-Pilot Project Brings VNS Therapy to Ukraine
In the fight against epilepsy, a neurological disorder characterized by recurrent seizures, the Co-Pilot Project, an initiative under the auspices of Razom Health, has emerged as a beacon of hope for children in Ukraine. Through a generous grant from LivaNova, the leading producer of Vagus Nerve Stimulation (VNS) systems, Co-Pilot has brought this life-changing therapy to Ukraine, offering a lifeline to children whose seizures have proven resistant to conventional treatment methods.
The Power of VNS Therapy
VNS therapy, a minimally invasive surgical procedure, involves implanting a small device called a neurostimulator under the skin, connected to the vagus nerve. This nerve, which runs from the brain to the abdomen, plays a crucial role in regulating various bodily functions, including seizure activity. The neurostimulator sends mild electrical impulses to the vagus nerve, helping to reduce seizure frequency and severity.
VNS is currently most commonly used for children who have partial seizures that do not respond to traditional interventions.
In Lviv, Ukraine, Mykhailo Lovga, Chief of Pediatric Neurosurgery at the First Medical Union, has successfully implemented the VNS system, bringing relief to six epileptic children. The first two surgeries, for Oleksandra from Mykolaiv and Denys from Dnipro, have been resounding successes.
Denys, a 9-year-old boy, has battled epilepsy since the age of three. Despite numerous medications and brain surgery, his seizures persisted. VNS therapy has offered him a renewed chance to live a normal life. Within three weeks of the operation, Denys has experienced a significant reduction in seizure activity.
In Kyiv, Konstantin Kostiuk, MD, PHD, Chief of Neurosurgery at the Romodanov Neurosurgery Institute, has introduced VNS therapy to a 10-year-old boy named Roman. Roman’s epilepsy, characterized by Lennox-Gastaut syndrome, has proven resistant to conventional treatments, including over ten anti-seizure medications and a ketogenic diet. VNS therapy represents another ray of hope for Roman, and the team is anticipating positive outcomes in the coming months.
The Co-Pilot Project’s success in implementing VNS therapy in Ukraine is a testament to the power of partnership and innovation. Working closely with local medical experts, Co-Pilot has ensured that these life-changing treatments reach the children who need them most.
Your support is crucial in enabling Co-Pilot to continue its work of providing life-changing medical care to children in Ukraine. Please consider donating to Razom and help us bring hope to those who need it most.
Together, we can make a difference.
Learn more about and support the Co-Pilot Project and Razom Health.
Investing in Ukraine’s Future: Razom’s Commitment to Education and Innovation
Razom is proud to support education in Ukraine. We are passionate about investing in the country’s talented youth, the future generation of professionals set to lead with innovation, drive positive change, and contribute to global advancements.
Recently, Razom sponsored the first, in-person school of mathematics for students in grades 1-6 and 10th grade, held in the Kyiv region at the end of October. This one-week event brought together 80 participants and featured not only intensive math sessions but also master classes, talent shows, chess tournaments and sports activities.
In the words of one participant, the atmosphere created by the teachers made math irresistible.. Onsite math schools are vital, providing face-to-face learning that fosters stronger connections and faster progress compared to remote alternatives.
The event was organized by Tsyfra, one of Kyiv’s finest math clubs dedicated to providing supplementary mathematical education and nurturing scientific thinking among primary and secondary students. With disciplines like math, mathematical logic, physics/natural science and chess, Tsyfra educates through study groups, emphasizing problem-solving via lectures, seminars, games, and theoretical analyses.
The center’s commitment to academic excellence is evident through consistently high results in various Olympiads and competitions, as students continue to excel, even amidst the challenges of war.
At Razom, our mission is to continue fostering democracy and prosperity in Ukraine, and we believe supporting education is a key, long term strategy to manifest this purpose. We proudly recognize the dedicated teachers shaping the minds of Ukrainian children, and the students who persevere in their studies. Our heartfelt gratitude goes out to our amazing sponsors, whose generosity makes these programs possible. Together, we’re paving the way for a brighter future in Ukraine.
We invite you to learn more and support Razom’s Relief Program, of which Razom Ticket is a part.
NEW YORK JETS ANNOUNCE RAZOM FOR UKRAINE AS RECIPIENT OF AN ADDITIONAL $100,000 FOR UKRAINIAN RELIEF EFFORTS
Part of $1,000,000 commitment from the Jets
The New York Jets have donated an additional $100,000 to benefit Razom for Ukraine. The donation is part of the organization’s $1 million commitment, to be split between various organizations, to help aid the humanitarian efforts in Ukraine. Previous donations of $100,000 were given to Razom for Ukraine, Plast Scouting, the Ukrainian National Women’s League of America, UNITED24, CityServe, Slow Beskid & Children’s Paths, Nova Ukraine and Revived Soldiers Ukraine.
In 2022 and 2023, Razom distributed more than $80 million in donated funds to over 150 organizations in Ukraine that provide aid and services to frontline and liberated areas that supply basic needs such as food, power, medicine, first aid kits and water filtration systems. Additional and ongoing support includes providing winterization materials to individuals along with the scaling up tactical medicines and supplies for field medics, evacuation vehicles, tourniquets, portable medical scanners, and mobile shower units for frontline defenders.
The events in Ukraine are personal to the Johnson family and the New York Jets. Suzanne Johnson, wife of Mr. Johnson, grew up in a Ukrainian neighborhood in New York and is from a family of immigrants. Her mother, Marie, was born to Ukrainian immigrant parents while her father, Stefan Ircha, is from Ternopil, a town outside of Kyiv, and immigrated to the United States after WWII.
For more information about the charitable organizations that have received the donations, please visit https://www.newyorkjets.com/community/ukraine-relief.
About Jets Foundation
We create impactful programming that leaves lasting legacies for our community. Initiatives funded by the New York Jets Foundation positively influence the lives of young people in the tri-state area and provide opportunity for disadvantaged communities.
About Razom for Ukraine
Razom for Ukraine (Razom) was founded in 2014 and is one of the leading US-based nonprofits dedicated to the mission of supporting a democratic and prosperous Ukraine. With a robust international network of volunteers and partners, Razom, which means “together” in Ukrainian, provides humanitarian aid, and administers programs and services focused on health, advocacy, civil society and culture. Razom advances its mission by creating spaces where people meet, partner and do, while maintaining a relentless focus on the needs on the ground in Ukraine. Since the full-scale invasion in 2022, Razom for Ukraine has grown to include over 200,000 donors and volunteers. Website: www.razomforukraine.org.
Contact: Meghan Gilmore (973) 549-4684
Photo: Greg Kupchynsky
Celebrating Ukrainian Culture: Highlights from the New York Ukrainian Cultural Festival
Celebrating Ukrainian Culture: Highlights from the New York Ukrainian Cultural Festival
This year’s inaugural festival, founded by Razom in partnership with Yara Arts, the Shevchenko Scientific Society and the Ukrainian Institute of America, took place from November 7 – 19 in New York City. It was dedicated to the memory of renowned Ukrainian writer Victoria Amelina, who tragically lost her life this past June when Kramatorsk was attacked.
“We decided to hold a cultural festival in New York to preserve her memory and the cause she was passionate about, the New York Literary Festival that she founded. Amplifying Ukrainian voices and cultural diplomacy here in the States are core principles of Razom’s mission, which we wanted to advance with this initiative. In general, over a thousand people connected with the festival, many of whom were not Ukrainian,” shared Razom Board member, Maria Genkin.
Various cultural events took place in Manhattan during the festival that focused on Ukrainian literature, music and cinema.
“We included a diverse range of films, opening with ‘Dovbush’ and hosting a packed evening with a selection of short films, concluding with ‘Pamfir’ receiving a standing ovation,” explained Polina Buchak, film curator at Razom.
Four events were dedicated to Ukrainian poetry. Poets Alex Averbukh, Boris and Lyudmila Khersonsky, and Iya Kiva read their poetry in the original, while translators or actors read in English. In events produced by Yara Arts Group, poetry from the Executed Renaissance generation of writers, Victoria Amelina, and Serhiy Zhadan, was featured.
In addition, the New York Public Library hosted a meeting with Ukrainian writers. Andrii Kurkov, Oksana Lutsyshyna, and Olena Styazhkina presented their novels published in America this year to over a hundred readers who attended.
During the festival, the public discovered the music of Sergei Bortkiewicz. Musicians Anna Shelest, Pavlo Hintov, and Oleksandr Chaplynsky performed works by this little-known composer born in Kharkiv at the end of the 19th century.
Throughout the festival, organizers raised funds for Amelina’s beloved “New York Literary Festival”. Our heartfelt thanks to everyone who helped organize this extraordinary celebration of Ukrainian culture and to all who attended!
Stay tuned for more exciting events! To support Razom: https: razomforukraine.org/donate
Rebuilding Together: Sturdy Roofs for Winter
Russia’s full-scale invasion left the Kharkiv and Kherson regions, including villages like Prudianka, Tsypivka, Brazhkivka, and Mala Komyshuvakha, along with the city of Izium, deeply scarred. With winter approaching, damaged roofs leave homes vulnerable to the elements. Recognizing the urgent need for shelter before winter, Razom under the auspices of our Relief Program, provided grants to Volonterska UA, Nove Misto and World foundation for Ukraine, to undertake the crucial task of rebuilding roofs.
Over the past 6 months, these communities bore the brunt of extensive damage: 90% of buildings destroyed, direct hits from unexploded ordnance, and the aftermath of shelling and explosive waves. Basic necessities became a luxury, with villages located up to 30 kilometers away from major roads, rendering them practically inaccessible. With shops, pharmacies, schools, and hospitals non-operational, the challenges were immense.
Despite these adversities, the resilient spirit of the people prevailed, and many chose to return to their villages post-de-occupation. However, the issue of housing reconstruction remained unaddressed, leaving damaged houses vulnerable to the harsh winter conditions. Mold, deteriorating ceilings, and cracked walls served as poignant reminders of the pressing need for immediate action.
United in purpose, Razom together with Volonterska UA, Nove Misto and World foundation for Ukraine have set their focus on repairing roofs and installing windows, with a clear goal: to secure homes before the unforgiving winter sets in. This ongoing project, now one and a half months underway, extends its reach to both the rural villages and the city of Izium, where over 100 private houses suffered significant damage.
Numbers Tell the Story:
Volonterska UA
People Helped: 151 individuals
Houses Restored: 30
People Still to Help: 10 families, 20 individuals (including 2 children)
Targeted Houses: 24
People to Help: 45 individuals
Targeted Houses: 12
The project is advancing steadily. Purchasing materials and completing repairs will span the next three months, ensuring the job is done thoroughly. Together, we’re not just rebuilding roofs; we’re restoring hope and resilience to the heart of Kharkiv and Kherson.
We invite you to learn more and support Razom’s Relief Program.
Honoring the Past, Inspiring the Future: Razom and the Holodomor90 Campaign
This year, as the global Ukrainian community marks the 90th anniversary of the Holodomor, Razom for Ukraine, has joined with Holodomor90, “an anti-genocide campaign dedicated to raising awareness and commemorating” the man-made famine that killed an untold number of Ukrainians from 1932-1933.
Holodomor is the Ukrainian word for “death by hunger”. Millions of Ukrainians are estimated to have perished this way as a result of Soviet forced, agricultural collectivization policies endorsed and executed by the dictator Josef Stalin, intended to slowly and systematically starve people and eradicate a nation.
Alongside a host of other mission-aligned partners based in North America, we are working on the stated objectives of raising awareness about this historical trauma so as to never forget, paying tribute to the victims and calling for official designation of the Holodomor as a genocide.
The Holodomor90 campaign culminates on Holodomor Memorial Day (the annual day of remembrance, every fourth Friday in November). This year, on November 25th, activists and allies alike are urged to light candles – an action known as запали свічку – in memory of the victims.
Here is how you, dear Razom supporter, can participate:
Sign the Petition for U.S. Genocide Designation
A petition on Change.org has been launched urging U.S. President Biden to issue a proclamation declaring the Holodomor a genocide. The goal is to obtain at least 25,000 signatures by Holodomor Memorial Day 2023. It would be a historic first for a U.S. president to bestow such a designation.
Mykola Murskyj, Razom’s Director of Advocacy said, “As Ukraine faces aggression from the Kremlin once again, it is paramount that the United States officially acknowledges that the Holodomor was a genocide. This historical recognition is an essential step in preventing such atrocities from happening in the future.”
Write a Blog
The Holodomor90 campaign invites writers of various disciplines and perspectives to contribute to the Holodomor literary space by submitting blog posts. Areas of expertise include: Survivor Stories, Historical Analysis, Research Insights, Artistic Expression, Holodomor Educational Resources, Reflections and Commentary.
#ShineALight
The #ShineALight campaign encourages individuals and groups to post “selfie” images or videos to their social media during the month of November. In these videos, participants can share their thoughts on why it is important to recognize the Holodomor as a genocide and express their solidarity with the Ukrainian people.
Purchase a Holodomor Sunflower Candle
The Sunflower Holodomor candle, created by Razom’s generous corporate partner Door County Candle Co., is now available on its website www.doorcountycandle.com.The candle comes in a 16 oz. jar and features a sunflower yellow wax with a vanilla scent. It stands as a symbol of remembrance and solidarity with those who suffered and 100% of the profits from the candle will be donated to Razom for Ukraine
Hold or Join a Candlelight Vigil
On Saturday, November 25, 2023, candlelight vigils will be held worldwide to honor the victims of the Holodomor. Joining a vigil near you is a meaningful way to pay tribute to those who perished and to stand in solidarity with the Ukrainian community.
Inspire the Future!
By participating in the #ShineALight movement, attending candlelight vigils, and supporting other Holodomor awareness initiatives, we can collectively honor the memory of those lost during the Holodomor and ensure that their stories are not forgotten. Together, we can illuminate this dark chapter in history and inspire a brighter future for Ukraine.
Razom and Partners Welcome Delegation from the Ukrainian Council of Churches and Religious Organizations
Header image: Delegation with Senator Chuck Grassley
Razom, in cooperation with Nova Ukraine, HTX4UKRAINE and MedGlobal, recently hosted a delegation of distinguished religious leaders from the Ukrainian Council of Churches and Religious Organizations (UCCRO) for advocacy programming in Washington, D.C. and Houston, Texas.
The Ukrainian Council of Churches and Religious Organizations (UCCRO) was established in 1996 as an interdenominational institution, aiming to unite the efforts of various denominations to focus on the spiritual revival of Ukraine, coordination of interconfessional dialogue in Ukraine and abroad, participation in a legislative process on church-state issues, and the implementation of comprehensive charitable actions. It is one of the largest nonprofits in Ukraine and represents over 95% of religious communities in Ukraine, including Christian, Jewish, and Muslim communities.
During their visit, the delegation engaged in a series of meetings with U.S. government officials, church counterparts, local communities, and media outlets, while also attending a range of public events.
The delegation shared information and perspectives on the state of religious freedoms in Ukraine and highlighted Russia’s disinformation efforts. They also exchanged insights with their U.S. counterparts, shedding light on how Ukrainian religious communities have responded to Russia’s invasion and the profound impact of Russia’s aggression on religious life within Ukraine.
Highlights included:
- An interfaith panel with the Atlantic Council at the US Institute for Peace, moderated by Marie Yovanovitch, former Ambassador to Ukraine, followed by a USIP private roundtable.
- A meeting at the State Department with Ambassador-at-Large for International Religious Freedom Rashad Hussain
- A panel discussion at Hudson Institute moderated by Nina Shea
- Meeting with USAID, Ukrainian Ambassador Oksana Markarova, Senator Chuck Grassley, the Heritage Foundation, ADAMS Center, the National Coalition Supporting Eurasian Jewry and more
- A meeting with Commissioner Eric Ueland and Ex. Dir. Erin Singshinsuk at the United States Commission on International Religious Freedom
- A trip to the White House for a meeting with Kelly Razzouk, Special Assistant to the President and Senior Director for Democracy
- A conversation with the American Jewish Committee, hosted by the Consulate General of Ukraine in Houston
- A special Ukraine Gratitude Dinner in Houston hosted by Ecclesia Houston Christian Community, featuring Congresswoman Sheila Jackson Lee
The visit highlighted the unity and diversity of Ukrainian religious communities in the face of Russia’s full-scale invasion, and gave the leaders a chance to spread their message to a wider audience through interviews with the press.
Press coverage highlights include:
- On a US tour, Ukrainian faith leaders plead for continued support against the Russian invasion – by Peter Smith, Associated Press
- Catholic Church in Ukraine facing extermination, bishops say – by Peter Pinedo, Catholic News Service
- Russia is attacking religious freedom in Ukraine. Does Mike Johnson care? – by Karen Tumulty, The Washington Post
- Ukrainian Church Leaders Sound Alarm on Russia’s Use of Religious ‘Jihadist’ Language to Prop Up War Effort – by David Zimmerman, National Review
- Ukrainian faith leaders say if Russia prevails, religious freedoms would be curtailed – Kate Scanlon, Catholic Standard
We extend our heartfelt gratitude to all of our partners and friends for engaging with the UCCRO delegation last week and helping us organize this trip!
Razom Supports the Publication of Olena Stiazhkina’s Novel and Forthcoming U.S. Book Tour
Razom has recently supported the publication of Olena Stiazhkina’s novel “Cecil The Lion Had to Die” by Harvard University Press’s HURI Books.
In this novel, Stiazhkina follows the fate of four families as the world around them undergoes radical transformations when the Soviet Union unexpectedly implodes, independent Ukraine emerges, and neo imperial Russia begins its war by occupying Ukraine’s Crimea and parts of the Donbas. Stiazhkina shows how new identities are forged based on distant and recent decisions people make when faced with the situation of a stark choice. Just as Stiazhkina’s own decision to transition to writing in Ukrainian as part of her civic stance—performed between the covers of this book that begins in Russian and ends in Ukrainian—the choices that the members of the four families make, take them in vastly different directions, presenting an image of the Donbas that is multifaceted and nuanced. A tour de force of stylistic registers and intertwining stories, ironic voices and sincere discoveries, this novel is a must read for those who seek to more deeply understand Ukrainians from the Donbas, and how history and local identity have shaped the current war with Russia.
A historian by training, Olena Stiazhkina is a prolific Ukrainian writer and journalist with numerous scholarly publications and eleven books of fiction. Until the occupation of the city of Donetsk, she taught Slavic history at Vasyl Stus National University in Donetsk (1993–2015) and then at Mariupol State University (2015–2016). Her scholarly interests focus on women’s history, life in the Soviet Union, and the history of the Donbas. Since 2016, she has served as the senior research fellow at the Institute of History of the National Academy of Sciences of Ukraine. Her works of fiction comprise collections of short stories, novels, and detective stories (under the pen name Olena Iurska). Having written almost exclusively in Russian before, Stiazhkina has been transitioning to writing in Ukrainian following Russia’s 2014 aggression against Ukraine .
The novel will be published by Harvard University Press in their Havard Library of Ukrainian Literature in the beginning of 2024. Advance copies of “Cecil the Lion had to Die” and “Ukraine War/Love: A Donetsk Diary” will be available at the November events listed below.
Razom is proud to be coordinating this book tour in partnership with other organizations.
- NOVEMBER 8th BOSTON
Harvard Ukrainian Research Institute, 6:00 pm
Pritsak Memorial Library at HURI, 34 Kirkland Street, Cambridge, MA 02138
- NOVEMBER 9th DARTMOUTH
- NOVEMBER 10th YALE
Henry R. Luce Hall LUCE, 203 34 Hillhouse Avenue New Haven, CT
- NOVEMBER 11th NEW YORK
Ukrainian Institute of America, 7:00 pm
The Forest Surrounds Poets event by Yara Arts dedicated to Victoria Amelina
- NOVEMBER 13th NEW YORK
Stavros Niarchos Foundation Library (SNFL), 6:30 pm
- NOVEMBER 14th MARYLAND
NAVAL ACADEMY
- NOVEMBER 15th DC
Georgetown University
- NOVEMBER 16TH DC
Ukraine House, 6:00 pm
Washington, 2134 Kalorama Rd NW, Washington, DC 20008, USA
- NOVEMBER 17th NEW YORK
NYU Jordan Center, 5 pm
- NOVEMBER 18th SEATTLE
Third Place Books, Ravenna, 7:00 pm
Olena Stiazhkina and Translator Dominique Hoffman
- NOVEMBER 20th San Diego
UCSD, 10:00 am
Huerta Vera Cruz Room, Student Center
- NOVEMBER 25th Philadelphia
Ukrainian League of Philadelphia, 800 N 23rd St at 7PM
- NOVEMBER 27th Princeton
144 Louis A. Simpson International Building, 12 pm
- NOVEMBER 29th Penn State
157 Burrowers, Penn State, 4:00 pm
- NOVEMBER 30th Philadelphia
ASEEES Conference
Philadelphia Marriott Downtown, Floor: 5th Floor, Salon C
Razom’s Ukraine on Campus Project Supports Student Activism Across the Country
(Uliana Storoshchuk / Ukraine Action Summit)
Pictured, right to left: Svitlana Kukharuk, Ukraine on Campus stipend awardee, Vitalii Svichinskyi, Razom in Ukraine, Oleksa Martiniouk, Ukraine on Campus
Hailing from universities across California, Florida, Iowa, New York, and Wyoming, the first cohort of Ukraine on Campus stipend awardees brought their unique stories and impactful advocacy to the halls of Congress recently. Razom for Ukraine, through the Ukraine on Campus project, was able to support five students in offsetting the cost of attending the third Ukraine Action Summit, which took place October 22-24, 2023.
The Summit, organized by the American Coalition of Ukraine, of which Razom is a founding member , consisted of panel discussions, collaborative advocacy training, and Congressional meetings on Capitol Hill. The three day event offered students, and constituents at-large, an opportunity to engage with their Congressional Representatives and Senators and develop sustainable relationships with their offices in advancing continued and unwavering support and aid for Ukraine. Student awardees brought their unique perspectives, academic expertise, and personal connections to Ukraine as they sat down with members of Congress and their staff to present legislative remedies to the greatest challenges facing Ukraine and her allies today.
This semester’s cohort of UAS stipend awardees included students from across the country, each displaying highly unique, yet very impactful leadership in championing Ukraine on their campuses and in their local communities. Solomiya Kovalenko, a student at Iowa State University, co-hosts a podcast about Ukraine on the local radio station in Ames, Iowa, in addition to her work with the Ukrainian club there. Svitlana Kukharuk, studying human rights at Bard College, launched the Ukrainian Solidarity Club focused on social, cultural, and activist outreach,after serving as an on-campus ambassador with the Lubetzky Foundation’s Global Democracy Ambassador Scholarship program. Pournima Narayanan, engages students at Stanford and beyond through her work with the Ukraine Support Alliance at Stanford and SUSTA, and makes an impact in the community through TeleHelp Ukraine and Brave Generation‘s MentorUkraine program. Oleksandra Nelson, president of the Ukrainian Student Association at the University of Florida, leads efforts to fundraise, educate, and advocate both on campus and in the Gainesville city community. Anastasiia Pereverten, working on an advocacy-related capstone project for the Honors College at the University of Wyoming after an internship with the New Lines Institute, has championed Ukraine in her small college town with everything from rallies and fundraisers to movie screenings and stickers.
Ukraine on Campus, already a database of 50+ Ukrainian student groups across American university campuses, is a developing project focused on connecting students interested in championing Ukraine and mobilizing the resources they need to activate their campuses in support of a Ukrainian victory. Its goal is to engage student activism both on campus and beyond through conferences, event tours, and more.
Like with the Ukraine Action Summit, Ukraine on Campus will offer a number of travel stipends for students to attend the Association for Slavic, East European, and Eurasian Convention this November-December. This year’s theme is decolonization, which is vital to the study of Ukraine.
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